Blog of the Society for Menstrual Cycle Research

Contraceptive Ignorance, Surviving the Zombie Apocalypse, Period Photoshoot, and other Weekend Links

May 19th, 2012 by Elizabeth Kissling

  • TLC is developing a new reality show about “extreme savers” and wants to talk with women who use cloth menstrual pads to save money. If you’re interested, GladRags has the casting call. This could be a great opportunity for menstrual education, or it could be a nightmare. Given that this is the network of Toddlers and Tiaras and Tattoo School, I know where I’m putting my money down.
  • A new study from the Guttmacher Institute finds that a nationally representative group of 1,800 unmarried women and men between the ages of 18 and 29 apparently do not truly understand how proper use of contraception can prevent pregnancy:
  • The quiz asked respondents to choose “true” or “false” answers for basic statements such as “all IUDs are banned from use in the United States” or “condoms have an expiration date.” More than half of the men and a quarter of the women received either a D or F on the quiz.

  • In a guest post at Sexy Period, Suzan Hutchinson, TSS survivor and Director of Connectivity for You ARE Loved, reminds us that while Toxic Shock Syndrome isn’t common, it still happens and the risks and symptoms aren’t well known. (I somehow missed this back in January when it first appeared.)
  • Dr. Jen Gunter’s Gynecology Survival Guide for the Zombie Apocalypse is also useful in an an earthquake, snow storm, flood, or any other natural disaster.
  • Friend of re:Cycling Amy Sedgwick (of Red Tent Sisters) is offering a free teleseminar on May 24 for women who are finding it difficult to conceive.
  • There Will Be Blood. Vice magazine has published a series of fashion photos featuring menstruation. View as a slide show, or click here to see thumbnails of all seven photos, which you can click to enlarge.

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

Midlife Muddle — Own the Power of Naming

May 17th, 2012 by Elizabeth Kissling

Guest Post by Jerilynn Prior, M.D. — Centre for Menstrual Cycle and Ovulation Research

By “midlife muddle” I don’t mean the trouble concentrating or remembering names that sometimes occurs for all of us (but more frequently if we’ve wakened with night sweats and not gotten back to sleep). I mean the condoned and official confusion about naming of women’s reproductive aging. Let me show you why I am upset.

 

STRAW+10 staging system for reproductive aging in women

Stages of Reproductive Aging Workshop (STRAW) held a 10-year anniversary last summer. (As someone frustrated by not being “heard” at the original conference, I still think that the “W” in STRAW should stand for Women!) Despite that, STRAW+10 has made progress because at least some of the classification is now supported by population-based prospective data rather than based on what experts believe. The names that are now politically correct are summarized in the STRAW+10 Executive Summary1 and the diagram1 at right.

 

We in the Society for Menstrual Cycle Research have also had our say about nomenclature: “Naming Women’s Midlife Reproductive Transition”.  I wrote this (with revision and refinement by collective effort of SMCR members) because women keep getting left out of this naming business. For example:

  • a regularly menstruating woman with night sweats, heavy flow, and increased cramps could learn to call herself perimenopausal2 (not STRAW+10 Late Reproductive Phase -3b?!).
  • a woman who just finished her period can say, I’m in late perimenopause and have at least a year without further flow before I’ll be menopausal. Based on STRAW+10 she could be told that specific menstruation was her final menstrual period (nickname “FMP”) and the next day, according to STRAW+10 be told that she is now “postmenopausal”!!
  • a woman with sore breasts, irregular periods, and heavy flow could say, I’m in perimenopause. However, she may instead be told she is in the “Early Menopausal Transition.” Because she has heavy flow she is also likely to be prescribed the birth control pill (as is currently and commonly recommended). Usually she will not be told that The Pill will make her perimenopausal irregular flow worse—she may well start spotting in the middle of her cycle.3

This new and improved STRAW+10 still centers all of women’s reproduction on that mythical FMP. But to call the FMP “menopause”, as many women’s health experts do, is just unscientific. It takes at least a year without another menstruation in those of us over age 45 before nine out of ten of us will not get another period4. But one (out of ten) of us will get a further, normal period even though we’ve been that whole year without any4. We can tell that new flow is normal (in other words, does not need investigation for endometrial cancer) if we had cramps or bloating or sore breasts or moodiness—or all of these—that told us our period was coming.

 

So our new Naming position statement says don’t call it “menopause” until you’ve not had a period for a year. And do call it “perimenopause” if things are variable and changing even if you are still having regular flow2.  Three of nine changes can confirm for you that you are perimenopausal even if your flow is still regular:2

  1. Shorter cycles (25 days or less);
  2. Increased cramps;
  3. Heavier flow;
  4. Increased trouble sleeping—especially waking up in the middle of sleep;
  5. New or increased migraine headaches;
  6. Night sweats—especially if they tend to occur before or during flow;
  7. An increase in or new premenstrual mood swings;
  8. New sore, enlarging or nodular breasts; and
  9. Weight gain without changes in what you eat or the exercise you do.

If women can learn to call themselves perimenopausal, they will be saying they know that perimenopause is not the same as menopause—perimenopause is a midlife transition with higher and erratic estrogen levels. Menopause is a fairly stable life phase with normally low estrogen and progesterone levels that begins one year after their last menstrual flow.

 

Furthermore, by naming themselves accurately they will be able to tell whether a medication that is proposed for them has been tested and proven effective in perimenopausal women. Usually symptomatic women are treated with oral contraceptives (that are proven reasonably safe and useful for premenopausal contraception), or offered hormone therapy that has only been tested and shown effective for hot flushes/flashes in menopausal women.

 

So. . . I like the word, perimenopause and think if women understand and own it they will be on their way out of a midlife muddle.

 

References

  1. Harlow, S. Executive Summary of the Stages of Reproductive Aging Workshop +10: addressing the unfinished agenda of staging reproductive aging [pdf]. Fertility Sterility, 2012   doi: 10.1016/j.fertnstert.20012.01.128
  2. Prior JC. Clearing confusion about perimenopause. BC Med J 2005; 47(10):534-538.
  3. Casper RF, Dodin S, Reid RL, Study Investigators. The effect of 20 ug ethinyl estradiol/1 mg norethindrone acetate (MinestrinTM), a low-dose oral contraceptive, on vaginal bleeding patterns, hot flashes, and quality of life in symptomatic perimenopausal women. Menopause 1997; 4:139-147.
  4. Wallace RB, Sherman BM, Bean JA, Treloar AE, Schlabaugh L. Probability of menopause with increasing duration of amenorrhea in middle-aged women. Am J Obstet Gynecol 1979; 135(8):1021-1024.

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

Are We Stalled?

May 14th, 2012 by Chris Bobel

What is worse? A problem unnamed or a problem named and denied as our own?

In a recent class discussion, a (white) student shared that she while she was in high school (a racially diverse high school, she explained), “everybody got along and racism was not a problem.” But now, since taking my class, she sees there IS racism around her.

The denial of racism in our own lives. This denial, like so many others, is certainly not uncommon, especially among those protected by some measure of privilege. Sometimes our denial is less passive (I didn’t know better); sometimes it is more active (I sure do know, but the knowing is painful and expects me to DO SOMETHING and I rather not, thank you very much).

This reminds me of the responses I typically hear from my students when we discuss menstrual shame. When I show commercials like the one below, they tell me they are NOT ashamed of their periods. They talk openly about their cycles. This menstrual taboo I speak of—old school. When I probe and ask if they carry their menstrual products around in the open, then, they tell me, “No…that’s just not something you do.”

 

A student denies racism in her high school, but sees it OUT THERE. Young women deny menstrual shame while concealing their tampons. These contradictions vex me. What gives?

I think we are in the midst of what sociologist Arlie Hochshild calls a ‘stalled revolution.’

Hochschild uses this concept to explain how the feminist movement helped women pursue careers but stalled before it (and by it, I mean WE) succeeded in dramatically altering the gendered division of household labor. I think the concept applies here, too.

We see racism but NOT HERE, not involving ME.  We follow the rules of concealment even while we deny that we are embarrassed. I am not ashamed; other people are. We can name the problem, but we cannot, will not, claim it for ourselves. That’s where the engine cuts out. That’s where we are stalled.

We live in a culture where racism is DISCUSSED, at least. Look at the tremendous response to the murder of Travyon Martin for a recent example. And we ARE  talking more about periods and about our bodies; the very fact that Kotex launched its ’break the cycle’ campaign in 2010 is fair evidence that the menstrual discourse IS enlarging. But forgive me if I am not jumping up and down with glee. After all, there’s more talk about EVERYTHING now. We have more ways, more means, more access to express and connect, instantaneously.  Some might argue we talk too much; we tweet and post and text before we think. Sometimes talk is just…talk.

Are talking toward change? Or we just talking, talking, talking about other people’s racism, other people’s shame.

What will it take to re-start our engines and both name and CLAIM the problems for ourselves?

 

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

How come we even have a Society for Menstrual Cycle Research?

May 11th, 2012 by Alexandra Jacoby

“How come we even have a Society for Menstrual Cycle Research?

Don’t we already know how it all works?”

That’s what my friend said to me when I was telling him something about something that came up related to the Society.

Well, do we?

—Already know how it all works.

I’ll go first.

I totally don’t.

For example, I didn’t grasp that taking birth control pills meant not having a period—even though I had been taking them for over 20 years.

And, when I mentioned that to someone recently, she said, “What do you mean? I thought the pill regulated your period…” The woman who overheard us, leaned in, “What? I don’t understand. I thought it controlled when…

This isn’t the only time I’ve been in a conversation, where most of us didn’t know much about how our bodies work when it comes to the menstrual cycle. We just hadn’t given much consideration to the internal processes, nor to the effects of the things we do to manage our cycle experiences (personal and social) as they relate to our day-to-day well-being, sexuality, fertility, relationship with the environment…

It’s not unusual to be involved in things we don’t fully understand. What all the parts do, and how they interact, and why the whole thing is organized the way it is—none of that is self-evident. So if nothing prompted you to ask, or to go deeper, wider than the first level of understanding (I took birth control pills to avoid getting pregnant, didn’t think it any further), then you stopped where you stopped.

In addition to what we individual women don’t know we don’t know, collectively, we do not know all about how the menstrual cycle works.

New discoveries are being made all the time, and not everyone agrees about what they mean, and sometimes they undo what we thought we understood.

I don’t see how we could ever be done understanding how our bodies work in general. Our bodies are continually evolving, as are our lifestyles and our environment. And, specifically, when it comes to the menstrual cycle, I think my friend’s point of view is a typical one, maybe informed by the femcare aisle in the drug store, the condom rack nearby, and that the pill is (probably) available behind the pharmacist’s counter. That about covers it, right?

Must admit: I used to think so.

The mission of the Society is here: http://menstruationresearch.org/about-the-society/. Read it.

What do you think?

Do you feel sufficiently informed, equipped, able and healthy when it comes to every aspect of your life impacted by the workings of your menstrual cycle?

Are new research developments clear to you?

Do you know what to expect throughout your menstrual life stages? What’s deemed typical, within a range of normal, and what’s a sign of a health issue?

How much variation is there among us?

What tells you when to look further, and when to accept the current perspective—and where do you go to get that information and guidance?

Do you feel supported by what is available to you?

 

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

Redbook Gets It Right

May 8th, 2012 by David Linton

Our recent Weekend Links post referred to a cheesy piece in Cosmopolitan magazine about stupid and offensive remarks that have been said to women by their ob/gyn.  At about the same time, Redbook‘s May 2012, issue had an article by another ob/gyn, Dr. Hilda Hutcherson, titled, “Have a healthy, happy vagina,” which used a q & a format to address “the five issues women stress about most” concerning their “lady parts.”

Image from Redbook, May 2012, p. 183

  1. Will childbearing “ruin” my vagina?
  2. Is the smell okay?
  3. Do I look weird down there compared to other women?
  4. Why don’t I have vaginal orgasms?  Can I change that?
  5. Why does my vagina sometimes hurt when I have sex?

The responses to the questions were basically thoughtful and supportive, though a bit coy sometimes, with the talk about “lady parts.” In other words, they gave the kinds of information that’s found all the time in the posts on re:Cycling.

It also included four dumb/insensitive things doctors have said while their patient was “in the stirrups.”  The heading was, “Your OB/GYN said WHAT!?”

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

The Eternal Feminine: Focused, Goal-Oriented, Practical, and Loving

April 30th, 2012 by Paula Derry

Visiting colleges became part of our repertoire of family trips back when my daughter was a senior in high school.   We visited many schools to get a sense of the range of possibilities that existed.   As was typical, Vassar offered a tour of the campus for groups of prospective students and their parents, led by tour-guides who were undergraduate students.  Vassar’s tour had one unique feature.  An original campus building, which dated to the post-civil war era, had an exceptionally wide hallway.  This, we were told, was because the all-woman student body needed to be able to walk back and forth repeatedly in the halls in their wide skirts, as part of a college program in physical fitness. Vassar, founded on the idea that the education of women should equal that of men, had a program of physical culture to offset criticisms that the school was endangering women’s health by educating them.

Sheila Rothman describes Vassar’s history in her book “Woman’s Proper Place,” published by Basic Books in 1978.  The common wisdom in the second half of the 19th century was that people have a limited amount of biological “vital energy.”  Rothman (p.24) quotes a contemporary physician:  ”Woman has a sum total of nervous force equivalent to a man’s” but the force is “distributed over a greater multiplicity of organs…The nervous force is therefore weakened in each organ…it is more sensitive, more liable to derangement.”  Menstruation and pregnancy were times of special danger, when the demands on her system were greater and the possibility of physical and mental disorder increased.  Menstruation was a time when women were irrational, even insane.  Caution, however, was always called for, as when intellectual activity or other exertion used up nervous energy.  Thus, when Vassar was founded, a program was put in place to overcome women’s predisposition to illness through a structured environment and programs of physical exercise.  Later, the Association of Collegiate Alumnae conducted a survey to provide research evidence as to whether female college graduates were normal.

Image by Thiophene_Guy // CC 2.0

Back in the Vassar of the present, our student tour guide wondered:  “How could anyone believe anything so silly?” It’s true that we no longer talk about a “vital force.”  Yet, broad generalizations about the nature of women and reproductive physiology continue to exist that have an air of plausibility, based today on a different scientific language, one of hormones, neurotransmitters, and other players.   Not very long ago, menopause was defined as an “estrogen deficiency disease” that had a uniquely powerful effect on health.  Heart disease was a disease of civilization for men and a disease of the ovaries for women.   The idea that the menstrual cycle destabilizes women’s minds, creating mood and intellectual changes, continues to exist.

One of my favorites is the idea that women are somehow receptive, loving, and self-denying because of their maternal role, which is somehow mediated by estrogen.  Thus menopause may be said to be a time that women regain the ability to focus more on themselves, liberated from a physiological preparedness for reproduction and its needs.   Pregnancy is a dreamy time when women are moody and unable to think clearly.

Sure, mothers are receptive, loving, self-denying, but they are also many other things.  I love being a mother.  My relationship with my daughter has been powerful, unique, and wonderful.  However, I know that a mother who is lost in a dreamy connectedness to her child or reflexively puts her child before herself can’t do everything she needs to do.   A mother is emotionally connected to her child but also must be an individual who perceives the child accurately, as a separate person, in terms of the child’s motivation and perspective, in order to provide both a sense of connection and the mirroring needed for a child’s emotional development.   Further, children misbehave, make mistakes, and must be taught all kinds of things; mothers must have clear-headed, pragmatic, problem-solving skills.

KOTEX IS IN THE HOUSE! (or, Is the House?)

April 27th, 2012 by David Linton

Despite occasional efforts by manufacturers of menstrual pads and tampons (the giants of the menstrual-industrial complex – thanks, President Eisenhower) to present period-positive images, they still seem unable to resist representing menstruation as an undesirable, embarrassing phenomenon. Women, particularly teens, are expected to grin and bear it as best they can while enduring their monthly misery.  Consider a recent example.

A few weeks ago, the small college where I work received 12 large cartons from a firm called Brand Connections, which apparently specializes in managing promotional campaigns that involve providing free samples of products.  Each carton contained 72 box-like items made up to look like thick text books but with a cover that closely resembled a copy of Teen or Seventeen magazine.  In large letters on the spine and front are the words, “GET REAL.”  The instruction sheet in each carton included warnings that the contents “may not be suitable for children” and that selling the items rather than giving them away “may result in civil and/or criminal prosecution.”  And, in bold type, the page states, “This box contains FREE House of Kotex samples!”  The college authorities were directed to, “Please hand out the House of Kotex samples to your Universities [sic] female students for their enjoyment.”

 

However, the contents of the package itself were a bit more ambivalent about any connection between menstrual products and enjoyment.

The box opens to disclose, on the right side, two plastic pouches, one white containing a pad and a panty liner, and one black containing a pad, a wipe and a tampon.  On the left, emulating a feature popular in teen girl magazines, is a six item quiz in which girls are asked to choose favorite shoes, lip gloss colors, eye shade, date wear and weekend entertainment.  The sixth item, “Being on your period is. . .” provides the following choices:

  1. the worst
  2. not so bad
  3. part of life
  4. super annoying

If one picks 1. or 4., one is directed to the black pouch; if one chooses 2. or 3., the white pouch is for you.

The cartons were placed around the campus at strategic locations for young women (or curious young men) to pick up the packets.  One enterprising student rifled a few dozen of the tampon packs to store up a stash of her preferred product for the next few months.

Though the cover photo of two smiling young women and the slangy headline references to bonding, fun, and sharing, as well as the playful references to popular items inside created a sense of happy girlhood, the non-so-subtle way the period was described unfortunately reinforced the nuisance trope that is so deeply engraved in young women already.

Readers are invited to propose alternative options to the last question in the menstrual quiz.

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

When Menstrual Talk Comes Home

April 16th, 2012 by Chris Bobel

For the last decade or so, like so many others who read and write for this blog, I have been researching, reading and writing about how we think, talk and act (out) about menstruation. My particular interest is the various interventions that some brave activists make to disrupt the dominant narrative of menstruation.

But this post isn’t about my work or even the work of others. Not exactly.

This post is about my daughters and what sometimes happens when my work comes home.

In 2006, when my oldest daughter Gracie was 13, we had one of many Mom-initiated short talks about her approaching menarche in the (of course) car. Posing as a super nonchalant mom, I casually asked:

ME: So what do you think your period will be like?

HER: I will hate it.

[GULP...I was grateful she could not see her feminist mother’s face completely cave in]

ME: Why do you think so?

HER:  All my friends hate theirs.

Later that year, I discovered her first period had arrived when I found a pair of her stained panties semi-hidden under her bureau in her bedroom. That evening, she agreed—none-too-cheerfully—to a dinner at a local Mexican restaurant, but we were not permitted to discuss “the event.” The next day, I set the kitchen table with candles, tea and her favorite dessert—just for the two of us—and I presented her with a lovely bag to store her menstrual supplies (that I am pretty sure she never used).

Getting her ears pierced

Photo by Aaron Conaway // CC 2.0

We had agreed, years before, that when she began menstruating, she would get her ears pierced. So we went to Claire’s and did the deed, but again, no fanfare—just a mom taking her teen daughter to get her ears pierced.

From that point forward, we rarely talked about her menstrual experiences, though I tried and failed several times.  For example, I suggested she try cloth pads (and why), but she was not the least bit interested.

I did notice, however, that she did not wrap her discarded pads in yards of toilet paper before putting them in the trash, and assuming she was following my own practice of refusing to ‘protect’ others from my menstruation, I privately registered a small but ambivalent victory. I worried: would this practice of  ‘failing to appropriately’ conceal her menstruation cause her embarrassment when she lived with others?

When my book on menstrual politics came out Gracie  was 16. She and 4 of her friends, all dressed in red dresses, circulated trays of  menstrually-themed (read: red) appetizers at my book party. The party favors, the decorations, and the conversation were all highly MENSTRUAL, and I heard no titters, detected no blushing between Gracie and her pals.

So did Gracie HATE her period, after all? Maybe not, but she, the child of a feminist committed to challenging the dominant cultural narrative of menstruation, became a girl, who, at best, managed her period. And I wanted better for her.

Today, my second daughter, Zoe, is 8.  She is 9 years younger than her older sister.

Since she could talk, she has called attention to my period. When she glimpses me changing my pad on the toilet  (yes, we have an open door policy), she typically remarks:

“You are having your period, Mama.”

“Yes, Honey, I am.“

She speaks as if her first period might be any day. It could be, but I doubt it. Her trajectory toward puberty seems to be moving at a pretty average clip.

Top five reasons not to talk about the menstrual cycle

April 12th, 2012 by Alexandra Jacoby
hand-mirrors and notebooks this morning

hand-mirrors & notebooks this morning

In last month’s blog post, I was thinking through why we weren’t supposed to talk about our bodies, and by the end of the post, it did seem to me that talking about our body-lives was a normal, sensible, useful, appropriate —just a big yes— thing to do.

And, then it got quiet.

Not just you.

I got quiet.

 

…here’s why —

  1. I should know this already! — my body, right? — how it works. Recently, a friend asked me [politely] how come we have a Society for Menstrual Cycle Research? Don’t we already understand how it works?
  2. Too personal — not everything in my life is public material [even if we’re friends].
  3. You’ll use it against me — you’ll stop listening when you don’t like what I have to say and chalk it up to that time of the month, or my being on the rag — rather than talking through when we disagree, or when my opinions are strong.
  4. It reminds everyone that I’m that other [messy] body type. And, I just want to be normal.
  5. Too busy — I have projects in the works, people waiting, emails to reply to, and what I’d really like is a vacation! Why do I need to be talking about this, too? I mean if everything’s working ok, what is there to discuss?

I just re-read last month’s post. When I wrote it, I thought I was writing it for you.

Turns out, I wrote it for myself.

I am uncomfortable in this conversation. Not always, and not always for the same reasons.

And, less so, having told you that…

What about you?


Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

Shit I Say

April 10th, 2012 by David Linton

Guest Post by Alexandra Epstein

A series of videos on YouTube have taken stereotypes to a whole new level.  Not only is ‘Shit Girls Say’ sexist, but it has created an empire of homemade ‘Shit (insert proper noun here) Say’ videos stereotyping hundreds of categories. To name just a few, “hung over girls,” “Asian moms,” “boyfriends,” “hot girls,” “fat girls,” “single girls,” and of course we cant forget about “girls who are on their periods.”

In this two-minute video, this girl seems to suffer from every social construction created pertaining to menstruation. From her constant longing for chocolate, to her feeling as if she is dying, to her mood swings, this girl over exaggerates all of the symptoms she claims to have.

The point of this video is to get a laugh, I know. So why be so harsh? It’s funny, right? The typical menstruating female is supposed to watch this and say “oh my God, I do that too! Haha!” However, not all women experience menstruation in the same ways. This generalization of how women act while they are on their periods is only reinforcing the stereotypes that men gain their information from and that so many women are trying to fight every day.

I have a proposition for someone. I want to see a new “Shit Girls Say on Their Periods” video. Only I want this video to portray a woman who embraces menstruation. I want to see a woman feeling extra creative, or extra in touch with herself, or even extra sexual. Why does this video have over a million hits? As a society we need to start changing the way people think about menstruation.

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

It’s My Period and I’ll Have a Party If I Want To

April 6th, 2012 by Elizabeth Kissling

Today’s post was created using the web tool Storify, and may take an extra moment to load in some browsers. If the page fails to load, please use your refresh/reload button

Post to Twitter Post to Plurk Post to Yahoo Buzz Post to Delicious Post to Digg Post to Facebook Post to MySpace Post to Reddit Post to StumbleUpon

Coming off Depo-Provera can be a woman’s worst nightmare

April 4th, 2012 by Laura Wershler

Need proof that women are sometimes desperate for information and support when it comes to quitting hormonal contraception? You need look no further than the 100 plus comments in reply to an old blog posting at Our Bodies OurselvesQuestions About Side Effects of Stopping Contraceptive Injections.  The comment stream – a litany of woes concerning women’s discontinuation of Depo-Provera – has been active since Nov. 2, 2009.

On March 29, 2012, Rachel, author of the post, wrote a follow-up piece in which she laments: “Although a quick internet search finds many women complaining of or asking about post-Depo symptoms, there isn’t much published scientific evidence on the topic.” Beyond research about bone density and length of time to return to fertility, little is known about the withdrawal symptoms women have been commenting about.

Depo-Provera is the 4-times-a-year birth control injection that carries an FDA “black box” warning that long-term use is associated with significant bone mineral density loss.  Never a fan, I made a case against this contraceptive in a paper for Canadian Woman Studies, published in 2005. The comments on the OBOS post indicate that many women took Depo-Provera without full knowledge of the potential for serious side effects while taking it, or of what to expect while coming off the drug.

Considering that Depo-Provera completely suppresses normal reproductive endocrine function, it is not surprising that many women experience extreme or confusing symptoms once stopping it. Take Lissa’s comment for example, posted on February 21, 2011:

Omg I thought I was tripping. I have been on depo for a year and stopped in jan. My breasts constantly hurt, I put on weight, have hot flashes, and sleeping problems. I pray everyday my cycle returns and stops playing with me. I only spot lightly.

Two and a half years after publication, the original article continues to garner monthly comments. I’ve read most of them and have yet to see one that offers concrete advice or a referral to resources that provide information and support to women looking for both. One such resource is Coming Off The Pill, the Patch, the Shot and Other Hormonal Contraceptives, a comprehensive, clinical-based guide to assist women transition back to menstruation and fertility, written by Megan Lalonde and Geraldine Matus.

Lalonde, a Holistic Reproductive Health Practitioner, and Certified Professional Midwife, helps women establish healthy, ovulatory cycles after using hormonal contraception. She says that women who’ve used Depo-Provera generally experience the most obvious symptoms and have the hardest time returning to fertility.  She finds that every client’s experience is different and will be affected by the status of their cycles before taking the drug, and their overall health. “It can take time to regain normal menstrual cycles, from a few months to 18 months, in my experience,” says Lalonde. “Some women have minimal symptoms while their own cycles resume, while others might have significant symptoms, including mood changes, unusual spotting and breast tenderness.”

The comments to the Our Bodies Ourselves blog post demonstrate that many women are not finding the acknowledgement and support they need to understand and manage the post-Depo transition. Some are disheartening to read, like this comment by Judy from April 12, 2011, and this recent one posted by Melani on March 21, 2012.

In my last re: Cycling post, I asked for input on the Coming Off the Pill Mind Map I created. I’ll be making a few revisions thanks to the thoughtful feedback readers have provided. I had assumed that this guide would be applicable to all methods of hormonal birth control but, after reading these women’s comments about their Depo-Provera experiences, it appears this contraceptive may require its own branch on the mind map.

Readers should note that statements published in re: Cycling are those of individual authors and do not necessarily reflect the positions of the Society as a whole.